Examining Diagnostic History of Individuals with Autism Spectrum Disorders


Researchers: Carly McMorris (MA Candidate), James Bebko, PhD (Department of Psychology, York University, ASD-CARC Team Members)

Purpose of the Study: Families of children with a diagnosis of Autism Spectrum Disorder (ASD) often report frustration with the process of diagnosing their child. It often involves multiple visits to a variety of different professionals with various diagnoses having been given, such as ADHD, Conduct Disorder, etc., as well as possible medications and changes in this diagnosis over time. This study is intended to document these complicated histories. Furthermore, the primary goal of this study is to better understand family's experiences, which may help to clarify appropriate diagnostic procedures for professionals.

How long will it take? 10-15 minutes to complete an online questionnaire.

What will I be asked? If you are a parent of a child with ASD, the questionnaire asks specific questions about your child's diagnostic history and current health status, such as "What is your child's primary diagnosis?" and "What type of medications is your child currently on". If you are an adult with an ASD, then the questionnaire will be about your diagnostic history. We may ask you to provide documentation to support you or your child's diagnostic history (this is optional).

Who can participate? Adults with an ASD or the parents/guardians of children who have been diagnosed with an ASD.

How can I participate? Login or register. Then click on the name of a person in your family diagnosed with an ASD and then click on the questionnaire "ASD Diagnostic History Questionnaire".

If you have any questions about this study, please contact Carly McMorris at